info@fightingbattendisease.org
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Whether you are a family (including newly diagnosed), a funder, the press, or someone with a fundraising idea — email is the best way to reach us. We aim to reply within a few working days.
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Registered CIO · Charity number 1219714
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What to expect
- We read every message that reaches us.
- We aim to reply within a few working days.
- We are not a 24/7 helpline or emergency service. In immediate danger call 999; for urgent health advice use NHS 111 or your clinical team.
- Urgent clinical questions should go to your medical team — we do not give medical advice.
- If your message is about a complaint, please put “Complaint” in the subject line.
- Safeguarding concerns: email us promptly — see Governance.
Charity details
- Name: Anisia's Hope - Fighting Batten Disease
- Charity number: 1219714
- Registered: 21 September 2026 (England and Wales)
- Website: fightingbattendisease.org
- Registered address: 43B Hill Road, Keresley End, Coventry, CV7 8JQ
- Governance: View governance
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